一瞬间已来到了2019年尾,回首凯欣与家人一同走过的甜,酸,苦,辣,真的是百般滋味在心头。凯欣今年已11岁了,留着一头乌黑卷曲的短发,脸上挂着一副眼镜和可爱的笑容,身高就快追到了妈妈。哇!好快哦,老二毅轩也已经8岁了。
凯欣换肝至今已有10年余了,此网页也有好一段时间没更新了。在这里,爸爸非常感激此网页的发起人,因为她的发起与呼吁,凯欣的手术费用在短时间内获得报社以及其他团体的配合支持之下才能够顺利筹足。人间有情,感恩所有在我们人生最艰难时刻给于我们最大扶持与帮助的家人,亲人,朋友,同事,教授,医生,护士,大众!因为您们,凯欣幸运能因换肝而重生!感激万分,感恩生命,感恩一切!感恩一路有您们!谢谢您们!
的确换肝之后的路真是可以说荆棘密布,一关关,一重重的挑战再加上凯欣的坚强,勇敢和毅力才能够一一的克服。也因为如此,使我们在人生的路途上有很大的领悟和懂得什么叫面对,什么叫接受,什么叫处理,什么叫放下。渐渐地我们的人生观也跟着改变了。当这一念开始转变之后,我们的经历与凯欣的成长也跟着起了变化。。。
自凯欣在2009年7月19日换了肝之后,一直纷纷扰扰她数年的是胆道流畅的问题。这问题时常会导致她发烧进院吊抗生素和影响其它肝指数的稳定性,我和太太陪伴她入院,进出新加坡国大医院检查与治疗更是无数次。不过,我和太太依旧如常地工作,积极地面对,老二也在2011年诞生了,因为我们深信这一切的发生将会成为过去。当别人看作是一种负担,我们却看作是一个挑战,一股磨炼。正如孟子所言: 天降大任于斯人,必先苦其心志,劳其筋骨,饿其体肤。。。
回到凯欣5岁那一年,即是2013年头,她的肝指数再次不寻常地升高,于是新加坡国大医生马上安排了一系列的检查,发现了肝藏里的胆管肿胀了。经过商讨后需要用PTC技术把这胆结石清除掉,我俩就把老二留在家由爷爷,奶奶和褓母看顾,然后带着小凯欣上“战场”去了。
虽说PTC是一个小型手术,但是也需要全身麻醉,我俩再次推着小凯欣进到这间非常寒冷和设备齐全的医疗室。接近超过一小时的时间,医务人员已作了胆石清除的工作,可是从2D图像看到胆管还是肿胀,胆石并未完全清除。所以需再安排做第二次的PTC清除疗程,也就是说小凯欣还需再踏进医疗室。
几天后,凯欣再次送进同样的医疗室,可是她这次并没这么容易的被麻醉,因为她的身体已适应了上次的剂量,麻醉师只好提升剂量,我俩就一直在旁哄着小凯欣,好让她慢慢地睡着。从她的眼神,她完全没有恐惧,因她深深地相信有父母陪伴在侧,一切都会没事,“父母心安,孩子平安”。
同样的,医疗团队在第二次作出最大努力的清除,详细的医疗报告需要等半天时间才能够确定胆石是否完全地被清除?午后答案终于揭晓了,从图像看还是有残留的胆石存在。凯欣的主诊医生教授并不满意,他要的是100%地清除,一劳永逸的解决这问题。这时PTC的医生看见小凯欣又要再次做同样的清除治疗便提出了建议,他要求与整个团队用时商讨,并同时让小凯欣回国回家休息。我俩也接受这样的安排,便欣慰地收拾行李然后长途驱车回家。不过,小凯欣腹部的PTC管子还得保留住,小凯欣必需定时到医院清洗伤口和检查以防发炎。坚强和勇敢的小凯欣回到家之后就一如以往的与毅轩在一起玩,虽然身上还吊着管子,她丝毫疼痛与疲倦都没有,这小孩太棒了!
等了一星期后,国大医疗团队有了方案,安排一星期后让小凯欣到新加坡治疗。此治疗方案是从未使用在胆管结石的个案上。然而,在多方的配合之下,医疗团队用了影像光管置入腹部的引导管,终于清清楚楚的发现了一堆胆结石。接着他们用激光镭射把胆石击碎,再用水把碎石冲出大肠。整个疗程从寻找,击碎,到冲洗用了将近一个半小时,这时在等侯室的我们看见小凯欣从手术室推出时有如释重负的感觉,心里慨叹着凯欣又经历了一场的战斗,希望接下来一切都会顺利和康宁。
在这短短几个月的时间里,我们又再次地成长了,领悟了,明白了,放下了更多,只要心存善念,无论是顺境或逆境,善缘或恶缘,都是好境界和好因缘。另外还有美国夏威夷修蓝博士的四句话,不可思议的内在力量,“对不起,请原谅我,谢谢你,我爱你” 都在这个时候一一地应验在小凯欣的身上。几乎以上每一次的治疗后,医疗团队们都担心会有细菌的感染而需要吊抗生素的疗程,因为胆结石的部分是细菌喜欢窩藏的地方。然而我俩并不畏惧,只要真诚心的祈求和不间断的正念,我们深信一切都会如愿和起作用。果然小凯欣都没有发烧和被细菌感染,顺利的复原,真是感恩与欣慰。
往后的日子,随着老二会走路之后,凯欣和毅轩定时早睡早起是每天必做的功课。身边很多人都常问为什么要天天早上六点前起床?凯欣自从换肝至今都必需准时服药,服药前后一小时都不能饮食,所以一年365天都要早起准时服药。因此我们一家都习惯天天早起了。再加上星期六,星期天,和公共假期我们都会带着孩子到附近的公园晨运以促进亲子关系,有时会打打球,踢踢球,以及老二最爱的运动之一“功夫”。所以当我们第一次去槟城旅行时,他们俩步行一整天之后并没有喊累,真是多亏平日的锻练。此后,我们都经常和家人一起到国内外去旅游及回爷爷中国老家乡寻根记!
在饮食方面,除了要定时服药之外,凯欣喜爱的食物也越来越多,如:鱼类,马铃薯,意大利面,香蕉,木瓜,寿司,汤粉类等等。只是我们都会叮嘱她尽量少接触冷饮,煎炸,火锅,以及其它半生熟的食物。除了饮食以外,注重卫生以及多喝水也是我俩包括爷爷和奶奶经常叮嘱的。
我深信这一切的发生并不是偶然的,因为这个因缘,我俩也慢慢接触了中华传统文化和佛法。所以当老二踏入4岁时,我们四人便报名参加每个星期天一个小时半的弟子规课程。此课程是由华严净宗学会主办名为“耕心园”,整个课程是免费的。当接触了圣贤教育之后,才知道自己长久以来所犯下的过失,需要一一的去改正。皆因一切都是唯心造,太上感应篇头一句是“祸福无门,惟人自造”。这几年下来我也不敢懈怠,有空时就会多读,多听经典,如听到有简单易懂的故事或典故就会与太太,孩子,家人和有缘的同事与朋友分享。简单易懂的,孩子会很快地吸收;深的,他们就会说“爸爸,又讲深话了”。凯欣在学习方面(她有兴趣的)也是蛮快的,只是会有一点点的惰性(这是正常的),和选择性喜欢记与做她爱做的东西如手工,看电视节目,唱歌,跳舞之类的。最近这几年,我们也带着孩子一起做家务如折叠衣服,洗洗碗碟,抹抹桌椅,整理房间,扫扫地,清洗厕所以及参与家里的年终大扫除。毕竟让孩子们多习劳以给机会他们修修福,培培福。
孩子们以后的路好不好走,就要从现在开始给他们扎根教育,此处所谓的“教育”并不是学校的知识教育而是伦理教育,因果教育,德行教育。皆因每个人的命运都是由思想决定行为;行为决定习惯;习惯决定性格;性格决定了我们未来的一生。
爸爸在这儿的心得分享或报告就暂告一段落,在这里献上给大家最近中国很火红的卡通电影“哪吒之魔童降世”里头的一个精句以共勉之,“我命由我不由天”。感恩,感恩。
在此祝福世界和平,风调雨顺,社会安康。
祈愿圣贤的教育得以弘扬,所有苦难的众生皆离苦得乐,消灾免难,阿弥陀佛。
Kai Xin is now 11 years old, this
blog was created by my close friend (ex-colleague in Formis) which began from
mid-2009 to appeal for fund to help Kai Xin for liver transplant operation in Singapore.
Time flies so fast, it‘s been 10 years. Now, Daddy is at the age of 40 and mommy is still look
young and pretty as “every year 25”.
Over the years, Kai Xin has
grown up a lot together with her loving brother Yi Xuan. Her naughty brother
always describing sister has a “spectacular” curly hair (爆炸头) with specs wearing
on her face. She is independence, demanding (especially on girl’s stuffs and foods), brave and strong but sometime emotional.
In view of her academy results in
primary school, she still finding “loss direction” in her study. However, 2nd
half of 2019 results were improved due to her interest in reading
comics. On the other side, her art crafting works is learn much faster than
academic study. Nevertheless, watch Hong
Kong TVB drama is her “must do” activity after everyday dinner with limited time (except exam week).
Both have been well trained by their
“disciplinary” daddy as they need to wake up very early every morning (with no excuse on
PH, Sunday and even “CNY NinChorYat”). Usually, we will go to a nearby public
recreation park during weekends/ non-school day latest by 7 am. We enjoyed our time together with fast walk, chit-chat, play
badminton, story sharing and “kung-fu fighting” between daddy and Yi Xuan
(of course sometimes Kai Xin will join us as well).
We believe to build and embed a good
moral guide to them since young is much better than everything. We have participated in a Chinese traditional culture education class (DiZiGui) on every Sunday morning since 2014. After many classes attended, we realized that
indeed the “change” should come from us (the parents) instead of children
because we are their learning example in their growing age.
About Kai Xin’s health, she is still
taking anti-rejection medication everyday with moderate dosage. Other than
this, her diet is as usual as normal people but we prefer her to take more
hygienic & nutrition foods and less fast and junk foods such as McDonald, Maggi Mee and etc. Well, she has tons of favorite foods in her mind such as fish, Hakka Horpoleicha, sushi (only Kani Maki and egg Mayo), mee hoon soup, potamo, pumpkin, banana, papaya, indian tosei and roti canai, spaghetti,
mushroom cheese bread, yogurt and unstoppable Isomil soymilk since her
transplant until now.
We still bringing her to follow up
(medical annual screening) at NUH, Singapore on yearly basis and having blood test locally on quarterly basis. We always emphasis to her that LOVE is directly
affect to everyone’s health. You must
LOVE your cells, organs, body and everything then only can lending your hand to
help or love others because the body is given by the parents especially from 10
months of pregnancy until mommy fighting pain and delivered. Whenever you sick
or body hurt is directly hurting to parents’ heart. Therefore, life is precious
to everyone in this world especially we can stay in this peaceful and free of natural
disaster land.
Moving forward, Kai Xin has to step
into phase III of her growing life become teenager (she told us that next year is the last to
celebrate children’s day in primary school). Our guidance and giving care to her will be much
more different than before, because she has her own thought, face physiologic
change, new influence on her personal emotions, mixing of new friends and etc.
Well, this a true life…
Lastly, I would like to take this opportunity
to deliver our heartfelt appreciation to our families, friends, colleagues,
doctors, nurses, teachers and everyone whom we don’t know to continue giving us
on spirit support, blessing, guidance, helps and so on…
Video of Kai Xin blessed 10th years liver transplant anniversary on 19 July 2019
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