十年回首...

一瞬间已来到了2019年尾，回首凯欣与家人一同走过的甜，酸，苦，辣，真的是百般滋味在心头。凯欣今年已11岁了，留着一头乌黑卷曲的短发，脸上挂着一副眼镜和可爱的笑容，身高就快追到了妈妈。哇！好快哦，老二毅轩也已经8岁了。

凯欣换肝至今已有10年余了，此网页也有好一段时间没更新了。在这里，爸爸非常感激此网页的发起人，因为她的发起与呼吁，凯欣的手术费用在短时间内获得报社以及其他团体的配合支持之下才能够顺利筹足。人间有情，感恩所有在我们人生最艰难时刻给于我们最大扶持与帮助的家人，亲人，朋友，同事，教授，医生，护士，大众！因为您们，凯欣幸运能因换肝而重生！感激万分,感恩生命，感恩一切！感恩一路有您们！谢谢您们！

的确换肝之后的路真是可以说荆棘密布，一关关，一重重的挑战再加上凯欣的坚强，勇敢和毅力才能够一一的克服。也因为如此，使我们在人生的路途上有很大的领悟和懂得什么叫面对，什么叫接受，什么叫处理，什么叫放下。渐渐地我们的人生观也跟着改变了。当这一念开始转变之后，我们的经历与凯欣的成长也跟着起了变化。。。

自凯欣在2009年7月19日换了肝之后，一直纷纷扰扰她数年的是胆道流畅的问题。这问题时常会导致她发烧进院吊抗生素和影响其它肝指数的稳定性，我和太太陪伴她入院，进出新加坡国大医院检查与治疗更是无数次。不过，我和太太依旧如常地工作，积极地面对，老二也在2011年诞生了，因为我们深信这一切的发生将会成为过去。当别人看作是一种负担，我们却看作是一个挑战，一股磨炼。正如孟子所言: 天降大任于斯人，必先苦其心志，劳其筋骨，饿其体肤。。。

回到凯欣5岁那一年，即是2013年头，她的肝指数再次不寻常地升高，于是新加坡国大医生马上安排了一系列的检查，发现了肝藏里的胆管肿胀了。经过商讨后需要用PTC技术把这胆结石清除掉，我俩就把老二留在家由爷爷，奶奶和褓母看顾，然后带着小凯欣上“战场”去了。

虽说PTC是一个小型手术，但是也需要全身麻醉，我俩再次推着小凯欣进到这间非常寒冷和设备齐全的医疗室。接近超过一小时的时间，医务人员已作了胆石清除的工作，可是从2D图像看到胆管还是肿胀，胆石并未完全清除。所以需再安排做第二次的PTC清除疗程，也就是说小凯欣还需再踏进医疗室。

几天后，凯欣再次送进同样的医疗室，可是她这次并没这么容易的被麻醉，因为她的身体已适应了上次的剂量，麻醉师只好提升剂量，我俩就一直在旁哄着小凯欣，好让她慢慢地睡着。从她的眼神，她完全没有恐惧，因她深深地相信有父母陪伴在侧，一切都会没事，“父母心安，孩子平安”。

同样的，医疗团队在第二次作出最大努力的清除，详细的医疗报告需要等半天时间才能够确定胆石是否完全地被清除？午后答案终于揭晓了，从图像看还是有残留的胆石存在。凯欣的主诊医生教授并不满意，他要的是100%地清除，一劳永逸的解决这问题。这时PTC的医生看见小凯欣又要再次做同样的清除治疗便提出了建议，他要求与整个团队用时商讨，并同时让小凯欣回国回家休息。我俩也接受这样的安排，便欣慰地收拾行李然后长途驱车回家。不过，小凯欣腹部的PTC管子还得保留住，小凯欣必需定时到医院清洗伤口和检查以防发炎。坚强和勇敢的小凯欣回到家之后就一如以往的与毅轩在一起玩，虽然身上还吊着管子，她丝毫疼痛与疲倦都没有，这小孩太棒了！

等了一星期后，国大医疗团队有了方案，安排一星期后让小凯欣到新加坡治疗。此治疗方案是从未使用在胆管结石的个案上。然而，在多方的配合之下，医疗团队用了影像光管置入腹部的引导管，终于清清楚楚的发现了一堆胆结石。接着他们用激光镭射把胆石击碎，再用水把碎石冲出大肠。整个疗程从寻找，击碎，到冲洗用了将近一个半小时，这时在等侯室的我们看见小凯欣从手术室推出时有如释重负的感觉，心里慨叹着凯欣又经历了一场的战斗，希望接下来一切都会顺利和康宁。

在这短短几个月的时间里，我们又再次地成长了，领悟了，明白了，放下了更多，只要心存善念，无论是顺境或逆境，善缘或恶缘，都是好境界和好因缘。另外还有美国夏威夷修蓝博士的四句话，不可思议的内在力量，“对不起，请原谅我，谢谢你，我爱你” 都在这个时候一一地应验在小凯欣的身上。几乎以上每一次的治疗后，医疗团队们都担心会有细菌的感染而需要吊抗生素的疗程，因为胆结石的部分是细菌喜欢窩藏的地方。然而我俩并不畏惧，只要真诚心的祈求和不间断的正念，我们深信一切都会如愿和起作用。果然小凯欣都没有发烧和被细菌感染，顺利的复原，真是感恩与欣慰。

往后的日子，随着老二会走路之后，凯欣和毅轩定时早睡早起是每天必做的功课。身边很多人都常问为什么要天天早上六点前起床？凯欣自从换肝至今都必需准时服药，服药前后一小时都不能饮食，所以一年365天都要早起准时服药。因此我们一家都习惯天天早起了。再加上星期六，星期天，和公共假期我们都会带着孩子到附近的公园晨运以促进亲子关系，有时会打打球，踢踢球，以及老二最爱的运动之一“功夫”。所以当我们第一次去槟城旅行时，他们俩步行一整天之后并没有喊累，真是多亏平日的锻练。此后，我们都经常和家人一起到国内外去旅游及回爷爷中国老家乡寻根记！

在饮食方面，除了要定时服药之外，凯欣喜爱的食物也越来越多，如：鱼类，马铃薯，意大利面，香蕉，木瓜，寿司，汤粉类等等。只是我们都会叮嘱她尽量少接触冷饮，煎炸，火锅，以及其它半生熟的食物。除了饮食以外，注重卫生以及多喝水也是我俩包括爷爷和奶奶经常叮嘱的。

我深信这一切的发生并不是偶然的，因为这个因缘，我俩也慢慢接触了中华传统文化和佛法。所以当老二踏入4岁时，我们四人便报名参加每个星期天一个小时半的弟子规课程。此课程是由华严净宗学会主办名为“耕心园”，整个课程是免费的。当接触了圣贤教育之后，才知道自己长久以来所犯下的过失，需要一一的去改正。皆因一切都是唯心造，太上感应篇头一句是“祸福无门，惟人自造”。这几年下来我也不敢懈怠，有空时就会多读，多听经典，如听到有简单易懂的故事或典故就会与太太，孩子，家人和有缘的同事与朋友分享。简单易懂的，孩子会很快地吸收；深的，他们就会说“爸爸，又讲深话了”。凯欣在学习方面（她有兴趣的）也是蛮快的，只是会有一点点的惰性（这是正常的），和选择性喜欢记与做她爱做的东西如手工，看电视节目，唱歌，跳舞之类的。最近这几年，我们也带着孩子一起做家务如折叠衣服，洗洗碗碟，抹抹桌椅，整理房间，扫扫地，清洗厕所以及参与家里的年终大扫除。毕竟让孩子们多习劳以给机会他们修修福，培培福。

孩子们以后的路好不好走，就要从现在开始给他们扎根教育，此处所谓的“教育”并不是学校的知识教育而是伦理教育，因果教育，德行教育。皆因每个人的命运都是由思想决定行为；行为决定习惯；习惯决定性格；性格决定了我们未来的一生。

爸爸在这儿的心得分享或报告就暂告一段落，在这里献上给大家最近中国很火红的卡通电影“哪吒之魔童降世”里头的一个精句以共勉之，“我命由我不由天”。感恩，感恩。

在此祝福世界和平，风调雨顺，社会安康。

祈愿圣贤的教育得以弘扬，所有苦难的众生皆离苦得乐，消灾免难，阿弥陀佛。

嗨！大家好！我是凯欣

JOURNEY…

Kai Xin is now 11 years old, this blog was created by my close friend (ex-colleague in Formis) which began from mid-2009 to appeal for fund to help Kai Xin for liver transplant operation in Singapore.

Time flies so fast, it‘s been 10 years. Now, Daddy is at the age of 40 and mommy is still look young and pretty as “every year 25”.

Over the years, Kai Xin has grown up a lot together with her loving brother Yi Xuan. Her naughty brother always describing sister has a “spectacular” curly hair (爆炸头) with specs wearing on her face. She is independence, demanding  (especially on girl’s stuffs and foods), brave and strong but sometime emotional. 

In view of her academy results in primary school, she still finding “loss direction” in her study. However, 2^nd half of 2019 results were improved due to her interest in reading comics. On the other side, her art crafting works is learn much faster than academic study.  Nevertheless, watch Hong Kong TVB drama is her “must do” activity after everyday dinner with limited time (except exam week).

Both have been well trained by their “disciplinary” daddy as they need to wake up very early every morning (with no excuse on PH, Sunday and even “CNY NinChorYat”). Usually, we will go to a nearby public recreation park during weekends/ non-school day latest by 7 am. We enjoyed our time together with fast walk, chit-chat, play badminton, story sharing and “kung-fu fighting” between daddy and Yi Xuan (of course sometimes Kai Xin will join us as well).

We believe to build and embed a good moral guide to them since young is much better than everything. We have participated in a Chinese traditional culture education class (DiZiGui) on every Sunday morning since 2014. After many classes attended, we realized that indeed the “change” should come from us (the parents) instead of children because we are their learning example in their growing age.

About Kai Xin’s health, she is still taking anti-rejection medication everyday with moderate dosage. Other than this, her diet is as usual as normal people but we prefer her to take more hygienic & nutrition foods and less fast and junk foods such as McDonald, Maggi Mee and etc. Well, she has tons of favorite foods in her mind such as fish, Hakka Horpoleicha, sushi (only Kani Maki and egg Mayo), mee hoon soup, potamo, pumpkin, banana, papaya, indian tosei and roti canai, spaghetti, mushroom cheese bread, yogurt and unstoppable Isomil soymilk since her transplant until now.

We still bringing her to follow up (medical annual screening) at NUH, Singapore on yearly basis and having blood test locally on quarterly basis. We always emphasis to her that LOVE is directly affect to everyone’s health.  You must LOVE your cells, organs, body and everything then only can lending your hand to help or love others because the body is given by the parents especially from 10 months of pregnancy until mommy fighting pain and delivered. Whenever you sick or body hurt is directly hurting to parents’ heart. Therefore, life is precious to everyone in this world especially we can stay in this peaceful and free of natural disaster land.

Moving forward, Kai Xin has to step into phase III of her growing life become teenager (she told us that next year is the last to celebrate children’s day in primary school). Our guidance and giving care to her will be much more different than before, because she has her own thought, face physiologic change, new influence on her personal emotions, mixing of new friends and etc. Well, this a true life…

Lastly, I would like to take this opportunity to deliver our heartfelt appreciation to our families, friends, colleagues, doctors, nurses, teachers and everyone whom we don’t know to continue giving us on spirit support, blessing, guidance, helps and so on…

                                          

Video of Kai Xin blessed 10th years liver transplant anniversary on 19 July 2019

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Please help Elynna Cheah

It’s 2014. Chinese New Year festive has just gone not so far, and we just stepped into month of March. 12 Mar afternoon, I have received a call from a mother (who got my mobile no. from her facebook’s friend) said that her daughter was diagnosed Biliary Atresia and failed Kasai operation and need to carry out liver transplant as soon as possible. It is very unfortunate to hear this kind of news and I had tried my best to help and share with her on how she and her husband can reach the “destination” (liver transplant to save her baby girl ‘Elynna Cheah’).

Well, at this stage fund and spirit support is very important for the family to ride thru and over this storm.

Fund, they are soliciting the fund from public through newspaper (China Press and Nanyang Press already released the news during last weekend). It is a positive move and good start for the journey.

Secondly, spirit support from family, relatives, friends and those anonymous who will soon become friends. No matter is Chinese, Indian, Malay and other races, they are willing to help out in various ways such as fund donation, diet supplement donation, and even pray for you with their own religious and so on.

This again will show us the kind of human beings. At here, The Lokes family wish Elynna Cheah get well soon and Kai Xin’s motto “Never give up, miracle is always there”.

You may read more about Elynna Cheah on her blog http://elynna2509.blogspot.com/.

踏入2014，很快地春节已静悄悄的溜走了。3月12 的中午，我接到了一通电话，电话的一端是一位身为人母的妈妈述说她女儿患上了胆道闭锁症和在60天内做了胆管引导手术失败以导致如今胆红素（人称黄）上升。孩子名谢琬雯将近6个月大，医生已检查孩子的肝已逐渐硬化了，功能不好也令其腹水滞留在身上。

她的情况犹如当年的凯欣，我深知父母必定是焦急不安，紧张以及毫无方向。所以便把本身的经厉和所知的资料告知对方。换肝的路是唯一的生路可是也不是平坦的路，此路刑棘密布，考验重重。所以能够在此刻转烦恼成智慧便能够处处逢生。

募款和关怀是如今最迫切需要的。报章已在上周末刊登了（中国报和南洋商报）琬雯的新闻。第一步已开动了，就别把它停下。

在此祝福琬雯你要勇敢与坚强，这条路你并不孤单因为有家人，亲戚朋友和很多热心人士将会为你打气，祈福和祷告。

最后也要献给琬雯的父母，别再埋怨，要学习满愿。常念圣严法师一句话，“面对它，接受它，处理它，放下它”。欲知更多关于琬雯的详情，可以浏览http://elynna2509.blogspot.com/。

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Grow...

Almost two years The Lokes never update this blog.

First of all, Kai Xin is grow up well and she has gone through many round of treatments after liver transplant done in 2009 i.e. rejection treatments; viral infection treatments; stent removal procedure in year 2012; biliary stone removal in year 2013. Every treatment on her, she grown stronger and braver than previous. Nevertheless, the parents also turned those obstacle force become our motivating force.

We learn, experience and face the reality, from here we use a philosophy to educate Kai Xin along her growing journey, never afraid, "face it - accept it - solve it - release it".  

Year 2013, Kai Xin started her kindergarden school life, at first the parents had to accompanied her and she kept looking around. Come to end of the year, now she can write, read, paint, draw, sing, dance on the stage in school performance day, play and 'ket poh' with her friends in school. She is consider smallest size within her age group in school however she is the bravest and loudest in school.

Yi Xuan's birthday

Well, we thank you all the people who support us before in making this miracle happened and we will continue to share our experience to those biliary atresia child and those who need to undergo liver transplant operation.

Never give up, miracle is always there.

***************************************************************************

人生的路程变化无常，人身难得。在世时就必需断一切恶修一切善，以增加我们的福报。

凯欣多年来的经厉都是我们身为父母的考验，逆境和恶缘都不断的催生我们要成长与觉悟人生的真谛“苦，集，灭，道”。凯欣每一次的治疗都会让我们都显得担心，紧张，和怜悯她小小的年纪就要吃苦了。直到2012年尾，我们并不畏俱了，因为相信了因果，知道这是她的业报身，受了果报就等于消了业障。佛菩萨有云，果报并不可怕，最可怕是现在造的因，“欲知前世因，今生受者是；欲知来世果，今生作者是”。

明白了事实真相，我们就不畏惧前路的挑战和勇猛精进的修行。所以在2013年3月到5月胆管石的治疗过程中，我们得到了明显的感应，也发愿凯欣能将其业报身转变成愿力身，长大以后为众生，为社会作贡献与服务。

经厉了，看多了，体验了，领悟了......

顺境时不起贪念之心，逆境时不生嗔恚之心。所以我们时时刻刻都要以真诚，清净，平等之心去接触这五浊恶世；再以本性流露的智慧与慈悲之心去看破和放下以让我们的身心得大自在。

因为凯欣促使我们有机缘接触到佛法以及遇到了善知识，契机以及缘殊胜才会让我们悟出以上的真理。皆因不怀疑，不夹杂，不间断，随缘念佛而得到了感应。真所谓“佛氏门中，有求必应”。

因为凯欣，我们成长了，也常把圣严法师的语录话铭记于心中“面对它，接受它，处理它，放下它”。

南无阿弥陀佛。

Best Regards
The Lokes
Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Gong Xi Fatt Cai & Happy Holiday

Wishing everyone a Fortune Lunar New Year! May the year of this Golden Rabbit brings you greater success, luck, joy, health and prosperity!

祝各位新年快乐，万事如意，身体健康。 恭贺新禧！兔年吉祥开心！

The Lokes Family

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

MERRY CHRISTMAS and HAPPY NEW YEAR 2011 !!!

It’s the time to greet all my family members, relatives, friends, colleagues and others who we never met before but they have gave us a big support during The Lokes’s toughest days.

MERRY CHRISTMAS and HAPPY NEW YEAR 2011!!!

Kai Xin is growing up as a normal kid, eat-play-sleep. Nowadays, she has another role in our family “housekeeping commander”, she always ask us to clean up the dishes after eat; require everything has to be tidy up like clothes, toys la and etc; sometimes she will use her face towel to start cleaning the floor, sofa, and her toys.

You all try to guess what is her favorite cartoon lately? Last time is Pink Panther, then Mickey Mouse … now is Elmo’s World by Sesame Street. She will not miss out every Sat and Sun 8.00am show on Astro Channel 613. Although it has been repeat few times on the channel, but she still love it very much. We have bought Elmo’s bottle, book, sticker and lanyard, but not the Elmo’s doll lo (because it’s too expensive).

In last two month, we have travelled to NUH often due to Kai Xin’s liver enzymes were abnormal. After several checkups and doctor has prescribed a steroid for her to take, finally her liver enzymes back to normal level. We have to say big thank you to the Prof. in NUH because of his experience, decision and immediate action that he has taken to treat Kai Xin.

Last and not least, we would like to share the latest photo that we taken from Kai Xin with all of you.

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin is TWO!

Once a year there is a very special day, 22 Oct is the Kai Xin's precious day...

Time fly very fast, Kai Xin is TWO!

She has received many many gifts, presents and great wishes from families, relatives and friends...

We have organized a small and warm birthday celebration party cum families gathering on last Sunday (Her actual birthday is on 22 Oct 2010).

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin Transplanted 1 Year (YEAH...)

It has been few months The Lokes didn’t update the blog, because daddy and mummy are very busy working in day time and taking care Kai Xin in the night time.

Flash back to the month of July, Kai Xin was admitted NUH to undergo PTC (Percutaneous Transhepatic Cholangiogram) procedure for stent removal. The reason to carry out the procedure is Kai Xin was developed few episode of fever on and off in past few months. Therefore, the surgical team suspected the stent was placed between common bile duct and intestine which caused the fever (a foreign body in human body for certain of period may cause viral or bacterial infection). Furthermore, this stent position is also very sensitive and critical because it’s at the connection for bile flow.

On PTC day, Prof, radiologist and doctors were prepared for the procedure in the early morning. We were accompanied Kai Xin till the procedure room. Wao, the room is extremely cool. At that time, Kai Xin was quite sleepy because doctor has given her sedation with oral medicine. The procedure started 8.30 in the morning. Fortunately, after an hour time the surgeon told us that the stent position is not in critical position and it was move into intestine route. The stent will not come out because it has moved to the intestine deadlock position. Most importantly, it wouldn’t implicate the liver normal function for future times. Again, it makes us happy and feel released after we heard that.

Other than this, Kai Xin is having a good development like crawling, standing with support, but she still feel lazy to walk and very nervous in any actions. On her medicine wise, she is now only consuming one anti-rejection medicine (Tacrolimus) with low dosage compare to early time.

Thank you again for all the family members, relatives, colleagues and friends who give prays and support to her all the times.

Time fly, she already underwent transplant for more than 1 year lol (Hoooray)…..

(This update suppose to be posted on 19 Jul 2010, because daddy and mummy are too busy)

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin's Latest in Sin Chew Jit Poh's Metro Edition

我的肝，是媽媽的肝‧小凱欣有愛更堅強

她天真無邪的笑容，彷彿告訴全世界的人，活著就是希望，堅強面對才是重生最關鍵的條件。

她雖然只有15個月大，可是僅有8公斤，小小的身軀卻蘊藏一股巨大的力量，堅強的意志力讓她繼續活下去，她就是去年透過《大都會》登報籌募醫藥費的羅凱欣。

小凱欣在出世110天就被證實患上天性膽管阻塞（biliary atresia），並通過星洲日報基金籌募50萬令吉的醫藥費到新加坡進行肝臟移植手術。

她在去年6月在新加坡進行的肝臟移植手術非常成功，而捐肝者就是其母親李彗菁。

如今她的腹部積水已消失，皮膚不再呈黃色，與其他嬰兒無異，不但可食用粥和魚肉，還會自行翻身和學習站立。

情況樂觀笑容燦爛

雖然手術後仍在觀察中，可是小凱欣手術後的進展比預期中理想，惟基於長期服用抗排斥藥物，促使小凱欣的免疫系統和體抗力比較弱。

縱使已出院回家，不過仍不可到人多的地方與群眾接觸，只能在家裡，或戴口罩到醫院接受檢查。

父親羅禮彬指出，小凱欣在去年肝臟移植手術後，12月杪出現發燒的症狀，在馬大醫院進行電腦斷層掃描和血液檢驗，發現有出現輕微排斥現象後再度到新加坡醫院接受治療。

小凱欣的病情良好，情況也相當樂觀，看見記者時回以燦爛的笑容，彷彿告訴要大家說：“謝謝大家，我很好！”

母親篇

我要用一輩子時間陪她

“凱欣是我的孩子，既然將她帶來這個世界，我們就該保護她，盡自己所能去延續孩子的生命。”
李彗菁慶幸自己可以移植肝臟給孩子，許孩子另一個重生的機會。

雖然面對肝臟移植手術的風險，但能夠捐肝給孩子，不必再等待其他肝臟來挽救孩子的性命，對李彗菁來說，已是一種恩賜。

當初化驗顯示其肝臟適合凱欣，她毫不猶豫的作出捐肝的決定。

小凱欣自小受病折磨，無形中產生一種堅毅的鬥志，其父母同樣以堅強的信念，時刻做好應對的準備，給她無微不至的照顧。一旦發現小凱欣的體溫超過38.5度時，就必須即刻送往醫院就醫。

“雖然要工作又要照顧孩子，可是這種生活卻磨練我們快速成長，如今看見孩子健康的成長，我們知道這一切都是值得的。”

由於小凱欣暫時無法與外界接觸，她只能透過網路讓家人與朋友看見小凱欣的進展，而其丈夫羅禮彬也不定時更新為女兒設立的部落格，以便讓關心小凱欣進展的公眾能知道最新的狀況。

目前小凱欣須長期服食藥物控制病情，惟李彗菁與羅禮彬卻抱著樂觀的態度，深信醫學界進步神速，小凱欣或是在不久的將來便無須再依賴藥物也能健康成長。

“既然決定讓她重生，我們就要用一輩子的時間來陪伴她，確保她的生命繼續燃燒。”

父親篇

面對母女生離死別考驗, 生命中最長的一天

去年的6月對羅禮彬來說是人生最大的轉捩點，也是充滿挑戰的一個月。當時的他處於與時間賽跑的狀況，又得面對與生命中最重要的人——老婆與女兒生離死別的考驗。

小凱欣在新加坡醫院觀察3週後，情況卻不樂觀，體重也預期中理想，惟醫生卻以生命為重，即刻做出移植肝臟手術的決定。

手術長達14小時

每次的手術都存在一定風險，母女倆長達14個小時的手術對羅禮彬而言非常難熬，悲喜交加的心情充斥他的心理，只能在手術室外靜靜的守候與祈禱，期待手術室的至親能堅強。

“捐肝臟的彗菁上午7時被推入手術室，下午3時才出來；小凱欣從上午10時就被一名麻醉醫生抱入手術室，到了晚上9時手術才宣告成功。”

手術後的11天，小凱欣都是在加護病房度過，她的身體與四肢都是插滿針管，令羅禮彬、公公、婆婆、外婆和伯伯等人倍感心疼，有者見狀眼淚不禁流下來。

由於太太彗菁須在家裡休養，照顧小凱欣的責任就在羅禮彬的身上。小凱欣在加護病房的第十天，羅禮彬看見女兒患病後半年的微笑後，彷彿整個世界都變得很美好。

羅禮彬坦言，他們夫婦倆在未啟程前往新加坡前，醫生曾慎重問了他們意見，而他果斷的做出移植肝臟手術的決定。

“雖然這個決定很難，不過動手術還有一絲希望，若不動手術就全無希望，因此我們決定放手一搏。”

遇見生命中的“貴人”

在新加坡醫院數個月，他認識了許多的患有同樣病症的父母，而羅禮彬在此時遇見了生命中的“貴人”。

“他是一名老師，也是一名虔誠佛教徒。老師經常都到醫院探望小凱欣，去年8月小凱欣動第二次手術時，他也是全天候為小凱欣誦經祈福，並夢見小凱欣的身體散發曙光，小凱欣10年後健康、快樂的在草地玩耍的畫面。

“雖然我不懂這個畫面是否會實現，不過小凱欣就如奇跡般，一次又一次的度過難關，她堅韌的意志力讓我們夫婦倆更加堅強走下去。”

他說，小凱欣的事情讓他學會感恩及真正領悟到人間有情，尤其是《大都會》、熱心人士捐助，馬大醫院和新加坡醫院醫護人員無私與大愛的精神，更是令他感動不已。

已停止募捐勿轉發電郵

“馬大醫院的一名醫生在小凱欣被送到新加坡醫院時，更是破例的親自聯同護士一起坐上救護車，全程護送凱欣到新加坡治療。”

他衷心感謝《星洲日報》讀者、親戚朋友、同事，以及一些熱心人士的慷慨解囊，透過星洲基金和電郵方式捐助，終讓女兒完成肝臟移植手術。

“目前我們已停止向公眾募捐手術費，因此公眾受促勿再轉發電郵，以免被人冒用名義籌款。”
隨著小凱欣的進展良好後，他們夫婦倆也喜與其他同樣境況的父母分享經驗，增加父母的信心，

同時也鼓勵父母別輕易放棄自己的孩子，而是用真誠的心，堅持地守護孩子。

你知道嗎？

小凱欣甫出世肚子鼓大

2008年10月22日，來自蕉賴的羅禮彬（31歲）與森美蘭州波德申的李彗菁（30歲）在結婚3年誕下愛情結晶品，全家上下滿心期待新生命的到來，女兒小凱欣在110天被證實患上天性膽管阻塞。

突如其來的消息令年輕的羅氏夫婦難以接受，抬頭問上天，為何會是他家的凱欣呢？然而，他們沒有太多埋怨的時間，只能把握每分每秒陪伴孩子。

凱欣在3個月大就接受第一次的手術切膽手術，可是卻在8個月大時肝臟出現硬化現象，腹部腫脹積水，腰圍更達22寸。

鼓大的肚子令她無法像一般的嬰兒般翻身、爬行，更別說是站立和走路，夫婦倆被告知後小凱欣情況惡化後，即刻做出為孩子進行肝臟移植手術的決定。

小凱欣通過星洲日報基金協助，以及公眾人士慷慨解囊下，終替凱欣籌獲50萬令吉的醫藥費，讓小凱欣到新加坡接受肝臟移植手術，而捐肝者就是其敬愛的媽媽李彗菁。

星洲日報／大都會‧2010.03.04

http://mykampung.sinchew.com.my/node/94559?tid=6

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 26 February 2010

Kai Xin has been discharged two days ago after 10 days of hospitalisation and antibiotic therapy was given. Yesterday, the doctor repeat the blood test and showed the liver enzymes are in normalising trend and diagnosed the fever was caused by viral infection.

During the 10 days of hospitalisation, Kai Xin has made a new friend namely 'Shuen Shuen'. She is 2 month younger than Kai Xin and also Biliary Atresia baby. She admitted to UM on the same day with Kai Xin due to fever caused by viral infection. She had succeed after Kasai procedure due to underwent the operation within 60 days (Golden period) after born. Shuen Shuen has to take few months to recover after the operation and now her jaundice is totally gone and liver is functioning well. Excellent!

Haha, she is more chubby than Kai Xin and very active and cheerful. Same, we will wish her and her family happy and healthy forver.

Also happened in CNY period, The Lokes has received a phone call from a friend who know few months ago. (The boy's mommy has learnt that Kai Xin has underwent liver transplant operation in NUH and would like to get more information about transplant for her son 'Ayden'). Ayden has just celebrated his 4th birthday last month. Ayden born with Alagille Syndrome which make him one very special baby in 100,000 births. Alagille Syndrome is a genetic disorder that affects the liver, heart, eyes and other systems of the body.

Recently, Ayden is warded in hospital as he fractured his left arm ulna and right leg femur. Same as Kai Xin last time, he also need to undergo the liver transplant operation as soon as possible. Now the family is appealing to all now, to help Pray for Ayden. For further details, please read here.

To family of Ayden, please to stay strong, never give up and miracle is always there.

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

GONG XI FATT CAI!

Dear all, we would like to take this opportunity to wish everyone GONG XI FATT CAI and may Tiger year bring more JOY, HAPPINESS, GOOD HEALTH, PEACE, GREAT FORTUNE and PROSPERITY to EVERYONE.

After Kai Xin had mild rejection near the year end of 2009, now she is doing well. Last week, we brought her to repeat the blood test in UMSC, the blood result shown the liver is functioning well. Nowadays, she is eat well, play well and catching up her developments in progress. Latest is standing and walking with support, calling "Ah Ba, Ah Ba", "Ah Ma, Ah Ma".

Initially, I would like to post this update on 14 Feb 10 ("Nian Chor Yat"). Due to Kai Xin has developed fever on CNY eve and she admitted UM on "Nian Chor Yee". So now, her fever is settled down, and the liver function is improved compare to the day she admitted. The doctors will continue the blood tests and antibiotics for her next few days.

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 15 January 2010

Thanks for all the well wishes. Sorry for the late update.

The result from the checkup last Thurday in NUH was fine. Kai Xin is back in KL and all seems well but we'll have to keep her closely monitored.


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 31 Dec 2009

Kai Xin was running a fever last week and we admitted her to UM for a blood test. The result shown that some of the index were abnormal, so the Singapore doctor advice was to closely monitor her. Doctor also gave her antibiotics thru IV as they suspected viral infection.

On 28 Dec, blood test was repeated. This time, some of liver panel indexes spike up a lot, some has doubled and one is tripled as compared to previous week. We quickly contacted the coordinator in Singapore. They required us to have ultrasound and biopsy on the liver. We can carry biopsy in UM but it takes a longer time for the result to be out.

We decided not to wait and seek UM's Professor's opinion. He suggested to go NUH and carry out the test.

We reached NUH around 8am on 29 Dec. The doctors arranged the assessment (ultrasound and liver biopsy) and blood test immediately for Kai Xin.

Today, the doctor informed that the preliminary result shown is rejection, but the rejection is on the bile duct area. The full report will be released next week. So anti-rejection medicine thru IV was prescribed for 3 days. Besides, they will also look for the next action on how treat those bile ducts that were dilated in the liver (not massive, just small portion).

Her other developments look normal - eat, play, sleep well... even her stools' colour is of healthy colour. We have asked the doctors why the rejection happened? Is it caused by the viral infection or whatever? But the doctors can only say there are many possibilities, and important thing is to act fast and monitor closely.

Looks like Kai Xin, Huey Jing, my mother-in-law and I will have to celebrate the new year in Singapore.

We would like to wish you Health,
So you may enjoy each day in comfort.

We wish you the Love of friends and family,
And Peace within your heart.

We wish you Wisdom to choose priorities,
For things that really matter in life.

We wish you Generousity so you may share,
All good things that come to you.

We wish you Happiness and Joy,
And Blessings for the New Year.

Thank you for everything you have done for us. Happy New Year!

Cheers,

Eric

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin is One!

Kai Xin celebrated her first birthday last week!

So far her development is good and progressing well. She had recovered from mild diarrhea last week, the stools that were sent for test has shown negative.

Huey Jing also progress well, but very busy at work.



Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Please Help Yeoh Yen Kee

We received a comment from Kar Hoe and we would wish to assist Kar Hoe to help spread the news to assist Yeoh Yen Kee for a bone marrow transplant. For further details, please read here.

You can donate by the following means:

(1) Maybank Berhad
Name: Yeoh Yen Kee
A/C No.: 107228093292

(2) PayPal
yk_yeoh@hotmail.com

(3) Guang Ming Daily
1. Issue a cheque to GUANG MING RIBAO Sdn. Bhd. (Charity Fund ).
2. Behind the cheque, please state beneficiary name's, in this case, Yeoh Yen Kee; and donor's details ie. Chinese/English name, NRIC, address and contact number.
3. Guang Ming Daily will mail the donor the official receipt for the contribution after clearance of the cheque. For cash donations, receipt will be issue immediately.
4. Send or submit your cheque to:

Guang Ming Ribao (Charity Fund)
67, Jalan Macalister,
10400 Pulau Pinang.
Tel No. :04-222 6783
Fax No. :04-222 6767
E-Mail :gslye@guangming.com.my

Source: http://helpyenkee.co.cc/

We have checked with Guang Ming Daily and verified that this is a genuine case. An article about Yen Kee was published in Guang Ming Daily. We wish to state that we're not an agent of Yen Kee's blog or author and we're not liable to solicit fund on behalf of Yen Kee. We're just helping to spread around the words.


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 6 October 2009

Kai Xin's appetite is getting better, she is willing to eat porridge even though milk is still her favourite "food". On the development wise, she can balance better these days while sitting on a baby walker. Her physical movement has improved due to more energy and stamina.


She is always happy and cheerful. Here are more Kai Xin's photo as per requests. Errr yes, she's bald cos we shaved her hair as she perspire a lot due to her activeness :D





Again we would love to thank you everyone who have helped us to make this possible. Without your help, seeing Kai Xin so cheerful now would not be possible. Perhaps attention can be shifted to assist Yen Kee now.



Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Circulation Of Our Appeals

It has been brought to our attention that our friends' emails (circa late May/early June) appealing for assistance are still in circulation. One of our friend still receives phone calls and emails to authenticate the appeal.

We would love to bring to your attention that we have successfully raised enough money for Kai Xin's transplant within a month plus. Kai Xin had undergone the transplant and recuperated in NUH Singapore for about 3 months. She has recently came back to Kuala Lumpur and she's recovering fine.

Yayasan Sin Chew addressed this matter on 30 September 2009 and the content as shown below.

羅父：凱欣已完成移植肝臟手術‧網友勿再轉發籌款訊息
雪隆 2009-09-30 12:25

（雪蘭莪‧八打靈再也）患有先天性膽管阻塞的羅凱欣早前已完成移植肝臟手術，所以其父親羅禮彬吁請網友不要再繼續轉發籌款的訊息。

由於網上仍流傳有關訊息，甚至被一些讀者誤以為是第三者冒用《星洲日報》的名義，籌募醫藥費，因此特地澄清。

《大都會》特此聲明，星洲基金為凱欣籌款活動已告一段落，同時也未授權任何人在網上或通過其他管道為她籌款。

目前在家裡療養

順道提醒讀者的是，小凱欣已在兩個月前順利動了手術和出院，目前正在家裡療養中，不過不方便接觸外人，以免受感染。

羅禮彬表示，女兒已於7月19日在新加坡一家醫院順利完成手術，並已回家與他們共聚天倫。

他本身看過有關電郵，那是今年6月份的郵件，內文是呼吁公眾每人樂捐5令吉，以協助小凱欣完成動手術的心願。

他說，有關電郵已經過時，資料顯示的銀行戶頭也是屬於其女兒的，相信在很多熱心人士一傳十、十傳百之下，有關郵件才會永無止休的流傳下去。

他也希望讀者不要對任何關於為凱欣籌款的函件信以為真。由於事件已告一段落，公眾無需理會。

星洲日報／大都會‧2009.09.29

http://mykampung.sinchew.com.my/node/78128?tid=6

Kindly stop forwarding the emails and if you so happen to receive these emails, do reply to the sender and recipients of the latest development on Kai Xin. You can direct them to this blog for the latest updates.

Thank you so much for your cooperation.

Rgds,
Eric & Huey Jing


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 26 September 2009

Happy news from Eric... Kai Xin and Huey Jing are back in Kuala Lumpur. They're both doing fine. Hope to hear more from them.

Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 20 September 2009

Latest update received from Eric and Huey Jing...


Kai Xin vomits after drinking milk but it's not a frequent occurrence. Firstly, we suspected it could be due to her activeness, twisting around and such which might caused her to vomit. Secondly, it could be viral infection in her stomach because her immuno system was surpressed. Thirdly, could be side effect of the medication she's taking. Her blood test result has shown her liver enzyme is a bit high, so she might be having viral infection.

Other than these, she is very active, playful, and cheerful. Her weight has not improve much but her abdomen is back to normal. Her appetite kept changing, which is a headache for them because she only want MILK even though we're introducing more solids to her.

Doctor has reduce some of the medicines, and ask us to have a close monitor on the frequency of her vomiting. Therefore, Kai Xin and Huey Jing are still staying at Singapore until further advice by the doctors.



Wishing all Muslims Selamat Hari Raya Aidilfitri. Maaf, Zahir & Batin.


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 2 September 2009

Kai Xin had her first check up last week and everything was fine. She's gaining weight and eating well. She's also very active these days and able to turn her body now. Albeit a little low in protein, she's now being fed with more solids ie. porridge cooked with meat inside.

Eric has come back to KL and started working this week. Huey Jing is recovering well and still stays in Singapore until green light is given by Kai Xin's doctors. With them is Huey Jing's mother who is helping her to take care of Kai Xin and bringing them to the hospital for the weekly checkups.


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.

Kai Xin as of 20 August 2009

The news that everyone is waiting for - Kai Xin is discharging TODAY!!!

The hospital is processing the procedure at the moment and Kai Xin should be out of the hospital very soon.

Kai Xin and Huey Jing will remain in Singapore for a period in case Kai Xin has fever or any issues, she can be readmitted to NUH in the shortest time possible for treatment as she still has a bile drain bag attached to her which will be removed after a month. Eric will be there until after the first followup, then he'll be back to work in KL.


Note: All comments are moderated which is why your comment will not appear immediately. Hence, you do not need to submit your comment more than once.