31 December 2009

Kai Xin as of 31 Dec 2009

Kai Xin was running a fever last week and we admitted her to UM for a blood test. The result shown that some of the index were abnormal, so the Singapore doctor advice was to closely monitor her. Doctor also gave her antibiotics thru IV as they suspected viral infection.

On 28 Dec, blood test was repeated. This time, some of liver panel indexes spike up a lot, some has doubled and one is tripled as compared to previous week. We quickly contacted the coordinator in Singapore. They required us to have ultrasound and biopsy on the liver. We can carry biopsy in UM but it takes a longer time for the result to be out.

We decided not to wait and seek UM's Professor's opinion. He suggested to go NUH and carry out the test.

We reached NUH around 8am on 29 Dec. The doctors arranged the assessment (ultrasound and liver biopsy) and blood test immediately for Kai Xin.

Today, the doctor informed that the preliminary result shown is rejection, but the rejection is on the bile duct area. The full report will be released next week. So anti-rejection medicine thru IV was prescribed for 3 days. Besides, they will also look for the next action on how treat those bile ducts that were dilated in the liver (not massive, just small portion).

Her other developments look normal - eat, play, sleep well... even her stools' colour is of healthy colour. We have asked the doctors why the rejection happened? Is it caused by the viral infection or whatever? But the doctors can only say there are many possibilities, and important thing is to act fast and monitor closely.

Looks like Kai Xin, Huey Jing, my mother-in-law and I will have to celebrate the new year in Singapore.

We would like to wish you Health,
So you may enjoy each day in comfort.

We wish you the Love of friends and family,
And Peace within your heart.

We wish you Wisdom to choose priorities,
For things that really matter in life.

We wish you Generousity so you may share,
All good things that come to you.

We wish you Happiness and Joy,
And Blessings for the New Year.

Thank you for everything you have done for us. Happy New Year!


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02 November 2009

Kai Xin is One!

Kai Xin celebrated her first birthday last week!

So far her development is good and progressing well. She had recovered from mild diarrhea last week, the stools that were sent for test has shown negative.

Huey Jing also progress well, but very busy at work.

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09 October 2009

Please Help Yeoh Yen Kee

We received a comment from Kar Hoe and we would wish to assist Kar Hoe to help spread the news to assist Yeoh Yen Kee for a bone marrow transplant. For further details, please read here.

You can donate by the following means:

(1) Maybank Berhad
Name: Yeoh Yen Kee
A/C No.: 107228093292

(2) PayPal

(3) Guang Ming Daily
1. Issue a cheque to GUANG MING RIBAO Sdn. Bhd. (Charity Fund ).
2. Behind the cheque, please state beneficiary name's, in this case, Yeoh Yen Kee; and donor's details ie. Chinese/English name, NRIC, address and contact number.
3. Guang Ming Daily will mail the donor the official receipt for the contribution after clearance of the cheque. For cash donations, receipt will be issue immediately.
4. Send or submit your cheque to:

Guang Ming Ribao (Charity Fund)
67, Jalan Macalister,
10400 Pulau Pinang.
Tel No. :04-222 6783
Fax No. :04-222 6767
E-Mail :gslye@guangming.com.my

Source: http://helpyenkee.co.cc/

We have checked with Guang Ming Daily and verified that this is a genuine case. An article about Yen Kee was published in Guang Ming Daily. We wish to state that we're not an agent of Yen Kee's blog or author and we're not liable to solicit fund on behalf of Yen Kee. We're just helping to spread around the words.

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06 October 2009

Kai Xin as of 6 October 2009

Kai Xin's appetite is getting better, she is willing to eat porridge even though milk is still her favourite "food". On the development wise, she can balance better these days while sitting on a baby walker. Her physical movement has improved due to more energy and stamina.

She is always happy and cheerful. Here are more Kai Xin's photo as per requests. Errr yes, she's bald cos we shaved her hair as she perspire a lot due to her activeness :D

Again we would love to thank you everyone who have helped us to make this possible. Without your help, seeing Kai Xin so cheerful now would not be possible. Perhaps attention can be shifted to assist Yen Kee now.

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02 October 2009

Circulation Of Our Appeals

It has been brought to our attention that our friends' emails (circa late May/early June) appealing for assistance are still in circulation. One of our friend still receives phone calls and emails to authenticate the appeal.

We would love to bring to your attention that we have successfully raised enough money for Kai Xin's transplant within a month plus. Kai Xin had undergone the transplant and recuperated in NUH Singapore for about 3 months. She has recently came back to Kuala Lumpur and she's recovering fine.

Yayasan Sin Chew addressed this matter on 30 September 2009 and the content as shown below.

雪隆 2009-09-30 12:25












Kindly stop forwarding the emails and if you so happen to receive these emails, do reply to the sender and recipients of the latest development on Kai Xin. You can direct them to this blog for the latest updates.

Thank you so much for your cooperation.

Eric & Huey Jing

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26 September 2009

Kai Xin as of 26 September 2009

Happy news from Eric... Kai Xin and Huey Jing are back in Kuala Lumpur. They're both doing fine. Hope to hear more from them.

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20 September 2009

Kai Xin as of 20 September 2009

Latest update received from Eric and Huey Jing...

Kai Xin vomits after drinking milk but it's not a frequent occurrence. Firstly, we suspected it could be due to her activeness, twisting around and such which might caused her to vomit. Secondly, it could be viral infection in her stomach because her immuno system was surpressed. Thirdly, could be side effect of the medication she's taking. Her blood test result has shown her liver enzyme is a bit high, so she might be having viral infection.

Other than these, she is very active, playful, and cheerful. Her weight has not improve much but her abdomen is back to normal. Her appetite kept changing, which is a headache for them because she only want MILK even though we're introducing more solids to her.

Doctor has reduce some of the medicines, and ask us to have a close monitor on the frequency of her vomiting. Therefore, Kai Xin and Huey Jing are still staying at Singapore until further advice by the doctors.

Wishing all Muslims Selamat Hari Raya Aidilfitri. Maaf, Zahir & Batin.

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02 September 2009

Kai Xin as of 2 September 2009

Kai Xin had her first check up last week and everything was fine. She's gaining weight and eating well. She's also very active these days and able to turn her body now. Albeit a little low in protein, she's now being fed with more solids ie. porridge cooked with meat inside.

Eric has come back to KL and started working this week. Huey Jing is recovering well and still stays in Singapore until green light is given by Kai Xin's doctors. With them is Huey Jing's mother who is helping her to take care of Kai Xin and bringing them to the hospital for the weekly checkups.

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20 August 2009

Kai Xin as of 20 August 2009

The news that everyone is waiting for - Kai Xin is discharging TODAY!!!

The hospital is processing the procedure at the moment and Kai Xin should be out of the hospital very soon.

Kai Xin and Huey Jing will remain in Singapore for a period in case Kai Xin has fever or any issues, she can be readmitted to NUH in the shortest time possible for treatment as she still has a bile drain bag attached to her which will be removed after a month. Eric will be there until after the first followup, then he'll be back to work in KL.

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19 August 2009

Kai Xin as of 19 August 2009

We've just received some pics of Kai Xin and her parents hot off the mailbox. Kai Xin's progressing well with increased amount of feeds. She weighed 5.8kg after the second operation and today she's 5.8kg. Her abdomen has gotten smaller from 56cm to 42cm.

We hope Kai Xin's smile will bring you some cheers and we must be strong like her to face our daily challenges.

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18 August 2009

Kai Xin as of 18 August 2009

I just got the latest news today that Kai Xin was supposed to be discharged last Fri but she had developed a fever hence had to stay on for observation and some tests. They can't find what caused the fever but at least her fever has been brought down.

Let's just pray she'll pull through and will be discharged this week.

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07 August 2009

Kai Xin as of 7 August 2009

There were fluid detected in Kai Xin's liver which the surgical team suspected that the small intestine which connected to liver to drain out the bile might be too small. Hence, the operation was conducted yesterday from 3pm - 8.20pm. The surgical team had drained the fluid and there is an infection which is luckily in a way being detected early. They have reconnected the small intestine with bile duct. Everything should be fine by now.

As much as we would love to update here as often as possible but it's pretty impossible to do this on a daily basis. We're taking it from Eric that no news is good news.

As of now, Huey Jing is recuperating away from the hospital. She is being taken care of by her mother in their relative home in Singapore. The most she could do now is taking slow walk and movement. She only gets to visit Kai Xin about 2 to 3 times a week.

Eric is 24x7 in the hospital and have never left the hospital since the transplant. He's constantly checking on Kai Xin through the day even at night, even though the nurses have told him to go back to have some rest but for the love of his daughter... he's always there for Kai Xin. When he's not observing her, he's constantly chanting and praying for their speedy recovery. So there is not much time he can go online and send us long updates. Hope you'll understand their predicaments.

We thank you for all your support and prayers.

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06 August 2009

Kai Xin as of 6 August 2009

We have received Eric's sms this morning and here's the summarise version:

Scans and tests were conducted on Kai Xin and one of the blood test result is still abnormal. The surgical team has identified the problem (which is related to bile duct) and Kai Xin is going in for an operation today to correct this.

This operation will be less complicated than before, nevertheless your support and prayers will be much appreciated. Thank you.

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04 August 2009

Kai Xin as of 3 August 2009

Kai Xin is out of ICU and recuperating well.

One of our friend visited her and Kai Xin kept smiling at her.

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29 July 2009

Kai Xin as of 28 July 2009

Update from Eric:

Kai Xin is still staying in the ICU. The reason she needed to stay so long in the ICU is because her lungs are weak after the operation. Her lungs were the primary concern of the surgical team and it is also as expected. After long hours of operation, usually the lungs will need to take time to recover especially the breathing part. Since Kai Xin is still young, she needed the ventilator machine to support her so that there is enough oxygen and pressure for her lungs to expand.

Kai Xin's development is very good, she is a true fighter. Yesterday, the ventilator machine support is removed, x-ray was done after that. Her lungs are better as compare to previously.

As for her liver, the last few days, her liver function test showed her new liver is functioning well, bile flow and blood circulation are also good. Kai Xin has strived through the 1st critical period (Doctor told us there are 3 periods that are very important to her, first week after operation, first month after operation, and first year after operation. Her condition will considered to be stable if she can pass these 3 critical periods.). Her jaundice level had came down 50% within the week and her abdomen is much smaller as compared to pre-operation.

Regarding her feeding, she was fed with milk few days ago. On the first day after the operation, they gave her glucose water, but the digestion was not too good. However, the next few days onwards, her digestion got better. So they decided to give the milk feeding. At this moment, she is still using the Nasogastric feeding tube. This morning, the Doctor told me that she has to start to take her food orally which is excellent as this will be another great big move, I am wishing her Nasogastric tube can be removed ASAP.

The rest like passing motion and urine are also good. She is getting very conscious now especially when the medical team touches her, she will begin to cry.

Now, the physiotherapist said she has to cough and cry more to improve her lungs.

Last but not least, thank you everyone for the well wishes and support.

Eric Loke

Update from Huey Jing:

I am fine and resting well at home. I went to the hospital for post operation check-up on Monday. My blood result looked fine with good improvement and my liver is recovering well. I managed to wake up from bed this morning without my mum's assistant. My wound is about 11.3 inches long and I feel better now, not as painful as before. I've stopped applying pain killer medicine.

Eric just told me this morning, little Kai Xin smiled at him today after so many days in pain. Daddy is very happy. Indeed, Kai Xin is a fighter!

We will continue stay strong with all the prayers and supports from everyone.

Once again thank you very much from us.

Warmest Regards,
Huey Jing

27 July 2009

Kai Xin as of 27 July 2009

Message from Huey Jing:

I'm fine, recovering but very painful. Not easy to sleep cos having stiff shoulder and muscular ache. Going for post operation check-up today. Kai Xin is still in ICU, I'll be visiting her today. Eric is with her 24x7. Will update more once I'm back from the hospital. Have a nice day! Many thanks to everyone.

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24 July 2009

Kai Xin as of 23 July 2009

Huey Jing has been discharged on Wednesday and Kai Xin's condition is improving.

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23 July 2009

Kai Xin as of 22 July 2009

Message from Huey Jing:

I'm recovering, good improvement. Maybe can discharge tomorrow. Although I am in pain, but it's worth it to save my little Kai Xin. She is still in ICU, she is a fighter and very strong, sure can overcome this. Continue to pray for both of us to get well soon. Thank you.

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22 July 2009

Kai Xin as of 21 July 2009

Both mother and daughter are stable and their conditions have improved a lot.

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20 July 2009

Kai Xin as of 20 July 2009

We have received some updates yesterday as the transplant progressed and here are they:

7.00 am - Huey Jing went into the OT.
10.00 am - Kai Xin's turn to go into the OT.
4.41 pm - Closing on Huey Jing and transplanting on Kai Xin.
8.10 pm - Closing on Kai Xin. Everything went smooth.
9:10 pm - Kai Xin settled down in ICU.

We are glad that the transplant went well and it ended earlier than the estimated time. We will try to update here as much as possible when we could. Thank you so much for all your support and prayers.

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15 July 2009

Transplant is Postponed

Thank you for all your prayers but the transplant is postponed to 19 July 2009 (Sunday) as the Chief Surgeon is not well.

Kai Xin's fever is under control now as her fever had made a come back last Saturday prompting the doctors to run some tests on her. Thank goodness all results came out all right and Kai Xin would be able to go ahead with the transplant.

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10 July 2009

Transplant Date is Confirmed!

One of us was down in Singapore on Wednesday and paid a visit to Kai Xin. We were told she's very very cute and she's holding on great there. At the same time, one of the chief doctor came and informed them the tentative transplant date would be done next Wednesday.

It is with great joy to announce that Eric had updated us today that the transplant date is CONFIRMED to be on 15 July 2009 (next Wednesday)!!!

We rejoice to hear this and all these would not have been possible to achieve in such a short time without your generous donations, support and prayers.

The transplant will start off with Huey Jing which will last about 4 hours, before Kai Xin's turn for 12 hours. With these, we would pray for both of them for a successful transplant and we hope you would join us too in prayers.

Thank you very much on behalf of The Lokes.

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08 July 2009

Kai Xin as of 8 July 2009

The pediatric surgeon visited Kai Xin yesterday and mentioned that the transplant can go ahead but then need to settle her fever first. The pediatric surgeon is a very busy person and have transplant scheduled on a weekly basis. Hence there is no date scheduled for Kai Xin as yet. Since Kai Xin and Huey Jing are in Singapore now, preparing and scheduling for the transplant would be easier. Since Kai Xin is well taken care of, we supposed a little wait should be all right, moreover it will give her opportunity to put on more weight.

She was fussing a little cause 3 teeth are coming out at the same time, despite all these Eric said she managed to smile this week. It has been a long time since she last smile according to him.

Kai Xin is a real fighter indeed!

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03 July 2009

We Have Met The Target!

Thank you! Thank you!

My family and I would like to say a big heartfelt thank you to all of you for your kind contribution and emotional support.

We are very grateful and relived to be able to announce that the funds raised through Yayasan Sin Chew, China Press, The Star and a large part of your donations to Kai Xin's account HAVE MET the target.

We are all very grateful to all of you who have contributed to make Kai Xin's liver transplant possible. Thank you so much. We should be getting the funds by next week to pay the deposit to NUH so that the transplant can go ahead.

While the cost of the liver transplant is now taken care of, our prayers and hope are for our little Kai Xin to have a successful operation. We cherish your prayers still.

At the moment, Kai Xin's condition is stable and she is not losing her weight. Yesterday, the doctor here changed her milk formula to another brand and so far Kai Xin has accepted the milk and could tolerate it. In the meantime, we are attempting to have Kai Xin put on some weight whilst waiting for the transplant date to be set. Huey Jing have to go through some counseling sessions and next week she will be interviewed by a Transplant Ethical Committee next week - these are the normal procedures to ensure that the donor is ready to donate the liver.

Thank you all once again for your generous donation and support, at least one part of the hurdle is surpassed and though there may be more as we go on , we know we can continue with your prayers and support.

Yayasan Sin Chew have published about it on Wednesday.

We apologise for not able to update here on a daily basis but we will try to make it as often as we could from the hospital.

May you all be well and happy.


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30 June 2009

Kai Xin as of 30 June 2009

Kai Xin's fever has been contained and she have stabilised by now. She under went ultra sound scan this morning.

It is with great joy that Huey Jing has been given the green light to be the liver donor after all the assessments. We're all rejoiced to hear this and our prayers are with them always.

29 June 2009

Kai Xin as of 29 June 2009

We have received Eric's latest update late last night. Kai Xin had a safe journey of 3.5 hours to reach NUH, Singapore on 27 June 2009 (Sat). Eric mentioned that everything was smooth and went well during the journey.

On Day One, Kai Xin was admitted to High Dependency Unit (HDU). All conditions were under control and Kai Xin was well taken care of by the doctors and nurses.

The doctors assessed Kai Xin on the morning of Day Two and everything is well that she was transferred to the general ward which is a good sign. Apparently the authorities in Malaysia did a great job and prepared her well, of course together with all your well wishes cum prayers.

Ultra sound will be conducted on Kai Xin for further assessment and to settle down her fever, antibiotic treatment will be given (usually 2 - 3 times a week).

If everything is all right, the transplant will be carried out soon as Kai Xin's liver is not in favourable condition.

We have received requests asking for a daily update of the collection but we're afraid that we won't be able to do that at the moment as The Lokes are in NUH, Singapore now. We'll try to get the amount from Eric when possible. The transplant will go ahead as they're confident that the amount will be met with the attention given by the press and also your generous donations.

With our hands clasped and brought close to our hearts, on behalf of The Lokes, we thank you for your compassion and generosity.

26 June 2009

Kai Xin as of 26 June 2009

Huey Jing is down in Singapore today for her final assessments. Kai Xin's condition is not very stable, hence the doctors in UMSC are urging the liver transplant team to have the transplant done ASAP despite not meeting the required weight.

UMSC will be sending Kai Xin down to NUH tomorrow in an ambulance accompanied by a medical officer. The liver transplant team should be able to finalised the transplant date once they checked on Kai Xin's condition.

Thank you and please pray hard for us.

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25 June 2009

Kai Xin in China Press on 22nd June 2009

Click to enlarge

The Star's Metro Section Highlighted Our Plight Today

Thursday June 25, 2009
Eight-month old’s only hope lies in a liver transplant

EIGHT-MONTH-OLD Loke Kai Xin is in need of a liver transplant.

Kai Xin, born on Oct 22 last year, was diagnosed with biliary atresia after developing jaundice when she was only three months old, and her parents have been advised that she should undergo liver transplant surgery at the National University Hospital, Singapore (NUHS).

Biliary atresia is a condition in which the bile produced by the liver cannot flow from the liver to the gall bladder, resulting in liver damage and ultimately, liver failure.

According to Kai Xin’s father, Eric Loke Lee Ping, the only place in Malaysia where liver transplant surgery is carried out is the Selayang Hospital, where the waiting period is a year.

In need of a liver transplant: Lee with Kai Xin. The baby has jaundice and a bloated belly, both signs of liver failure.

“In February, Kai Xin underwent a Kasai procedure (surgical treatment to allow bile from the liver to bypass blocked bile ducts) at the Sunway Medical Centre in Petaling Jaya but it was unsuccessful, and we were advised that a liver transplant was her only remaining option.

“As she was underweight, we were advised by the University Malaya Specialist Centre (UMSC) to seek medical help in Singapore,” said Loke, who was with his daughter and wife Lee Huey Jing at the UMSC in Petaling Jaya on Saturday.

“The doctor at NUHS told us that my wife is the most suitable donor.

“However, the medical team at NUHS has not scheduled any tentative date for the operation because Kai Xin’s weight has not reached the minimum requirement of 8kg.

“Kai Xin now weighs about 7kg, and only when she is at least 7.6kg will NUHS arrange a date,” he said.

To help Kai Xin gain weight, she has been warded at the UMSC where she is fed less milk volume but at increased frequency, using a feeding pump at night.

Loke said the liver transplant operation was estimated to cost RM500,000, inclusive of medical treatment like pre-surgery assessment procedures, post-operative care and follow-ups.

It is a sum that the couple cannot bear in full, and as such, they are appealing for help from the public.

A fund has been set up for Kai Xin under Yayasan Sin Chew.

Those who would like to make a contribution may issue a cheque to Yayasan Sin Chew, with the beneficiary’s name, donor’s full name, IC number, complete address and telephone number written on the back. The cheque should be sent to Yayasan Sin Chew at 19, Jalan Semangat, 46200 Petaling Jaya, Selangor Darul Ehsan.

Yayasan Sin Chew opens from 9am to 5pm, Monday to Saturday.

For enquiries, call 03-7965 8888 / 03-7965 8675.

Source: The Star Metro: Baby's Cry For Help

24 June 2009

Kai Xin as of 24 June 2009

Dear all,

Thank you for all your prayers, support and donations. I hope those who have been asking for our email or contact numbers would understand that we could not possibily entertain all calls or enquiries on our own. Rest assure you that all comments and emails directed to this blog will be looked into not only by myself but also but some friends whom I've entrusted them to manage this blog.

At the moment, myself and Huey Jing are working during the day whilst Kai Xin is taken care of by her babysitter alternating with my mother at the hospital. After work, Huey Jing and I, took over and take care of Kai Xin during the night and we go to work from hospital the next morning. It's very tiring and taxing but we have to do it for Kai Xin's sake.

At the moment, there isn't much improvement on Kai Xin's weight and her condition can be good on some days but not so favourable on certain days. Hence, the doctor in UMSC is urging the liver transplant team to reconsider and have the transplant done soonest possible.

We will update once there is any further development.

Thank you.


19 June 2009

Error Message Whilst Transfering Using Maybank2U

Dear donors,

We were informed that there were occassions where there is an error message that states "Unsuccessful - Account is not authorised. Reject code: [0076]" when transfers were done via Maybank2U. Please do note that it is a genuine error due to overwhelming of transactions to Kai Xin's account.

The interim solution at the moment by Maybank is to update the passbook every hour on a daily basis including Saturdays and Sundays to clear the logs.

We would like to thank you for your patience and thousands of apologies for any inconveniences caused.

17 June 2009

Maybank Account Jammed

Please accept our apologies if you have encountered any problem whilst transfering money to Kai Xin's bank account yesterday. Due to overwhelming of transfers, the account jammed up. Maybank have deleted the logs and it's now in working order again.

Thank you and sorry for any inconveniences caused.

15 June 2009

Sin Chew Jit Poh's Metro Edition Highlighted Our Plight

Sin Chew Jit Poh highlighted our plight in the Metro Edition section (click to enlarge) on 15 June 2009:-

You can donate via Sin Chew Jit Poh by:

1. Issue a cheque to Yayasan Sin Chew.

2. Behind the cheque, please state beneficiary name's, in this case, Loke Kai Xin; and donor's details ie. Chinese/English name, NRIC, address and contact number.

3. Yayasan Sin Chew will mail the donor the official receipt for the contribution after clearance of the cheque. For cash donation, the receipt will be issued immediately.

4. Send or submit your cheque to:

Yayasan Sin Chew
19 Jalan Semangat
46200 Petaling Jaya
Selangor Darul Ehsan

Yayasan Sin Chew opens from Monday to Saturday, 9am to 5pm.

For enquiry, please contact: 03-79658888/79658675 (Yayasan Sin Chew)

Yayasan Sin Chew will facilitate the contributions received and will liaise directly with the hospital on the payment of the costs. In the event there is any excess after the payments have been made, the balance of the donations received will be channeled to other charity.

11 June 2009

Thank You for All the Well Wishes and Update on Kai Xin (Dated 11 June 2009)

To all dearest friends, colleagues, and friends’ friends

First of all, I would like to say thank you in a million for the kindness help out and support on us (money, lucky star, lucky rice, prays, well wishes and etc). At here, I would like to make an updates to you all on how is Kai Xin and also the trip to Singapore.

We are safe and backed to Malaysia from Singapore after several assessments were carried out included recipient and donor. For Kai Xin, she went through all the assessments; her status for now is still ok and if she don’t carry out the liver transplant operation, surely will lead to the liver failure.

As usual, a lot of relatives, colleagues, friends asked me when is the operation is going to carry out, is the transplant operation date being fixed and etc. However, myself and even the liver transplant team couldn’t given me a tentative date for the operation because her weight is not up to the requirement 8.0 kg (at least 7.6 kg and above, they will start the workout and most probably arrange the date for us). It is because the main factors for the transplant is not only timing, it is also depend on the patient’s requirement and health condition. Thus, we only can do for now is pushing up her weight and maintain her healthy level at the tip-top condition.

For you all information, as spoken to the liver transplant team, to workout a liver transplant is not easy as compare to other operation. They required a lot of assessments to be carried out for both recipient and donor. When everything (patient’s weight, health condition for patient and donor, mentality readiness, and so on) is ready for the patient and donor, they will quickly arrange the operation in the soonest time. Surely, they wouldn’t take the risk to go for the operation if the patient and even the donor are not fit.

On donor side, since father is not a suitable person to be the donor, now they work out the assessment on mother. The reason is father’s liver artery is too short and narrow if the surgeon cut out the left lobe of the liver. Although there is no risk for father, but it will lead for future complication and the result will not be good for Kai Xin. When I heard this outcome, I feel so sad and really cried out after walked out from surgeon’s clinical room.

I think the GOD must has more important tasks for father to carry out. On the day, it is a very difficult night (Thursday) for me and Huey Jing to fall in sleep, we feel worry, tension, fear and etc. Because right after the surgeon turned down me as the donor, immediate we arranged Huey Jing to carry out the most important test (CT Scan) on Friday morning. Is very lucky and I think mostly there are a lot of wishes, prayers from you all to support us, Huey Jing successfully went through the vital scan and her liver size and artery structure is very complete and straight forward (our legs were shaking when the pediatric surgeon Prof. Prabha [liver transplant main surgeon] opened up the hospital system to go through the scanned result in front of us, wow at that moment both of us can only pray, pray and pray). So at this stage, Huey Jing is a suitable donor prior the rest of the assessments.

So the next course of action in summary is: -
  • Kai Xin has to gain her weight up to 8 Kg, liver transplant team will arrange the day for operation when her weight up to 7.6 Kg (Current weight, 7.2 kg inclusive of water in tummy)

  • Maintain Kai Xin’s healthy level as good as possible

  • Mother can carry out the rest of the assessments anytime

  • Kai Xin will stay in UM for longer period in order to gain up her weight. As recommended by doctor, they will use a feeding pump to feed her gradually in the night time (less milk volume and increase feeding frequency).
Lastly, we couldn’t believe the response is so well after we mailed out our story to our closed group friends, colleagues, relatives and other friends which we don’t know them as well. You all are always in our heart because you all giving us the best supports from money (as of 9 June 09, RM 38,435.00), well wishes, lucky stars, lucky rice, and also prayers from everywhere such as churches, temples, mosques and etc.

We will stay strong and continue the long journey with our Little Kai Xin.

Eric, Huey Jing and Little Kai Xin

10 June 2009

The First Appeal Sent Out by Our Ex-Colleague

Dear fellow colleagues,

Good day to you:

Never in my life I’ve ever thought that one day I’ll be doing this for people I’ve known personally. All along it has always been strangers or the closest is friend of friend’s. The need has now arise and I hereby wish to appeal for help on behalf of our ex-colleague, Eric Loke and Lee Huey Jing, (both formerly from Formis Software Dynamics Sdn Bhd).

Their daughter Loke Kai Xin was diagnosed with biliary atresia at 3 months old and a Kasai procedure was done in February then. Unfortunately, the procedure did not cure her condition and was advised liver transplant as her last and only option.

Due to her weight, she was advised by UMSC to seek medical help from Singapore. After the first round of pre-assessment at National University Hospital S’pore, both parents were found to be suitable donors for Kai Xin. As of today, 1st, June 2009, both parents are in NUH (Sg) for the second round of pre-assessment to confirm and determine their suitability to be donors.

The total cost including post-operations and follow up expected to be at the region of RM500k (liver transplant and pre-assessment SGD200k, post ops, follow ups etc) or more due to her age.

This amount is just too high for them to bear in full; therefore they are appealing for our help. They have also contacted NST but NST has a condition before publish their plight - the confirmed donor information and operation date - which Eric could only provide after the second pre-assessment.

A fund has been set-up for Kai Xin with following bank account details. For those who are keen, kindly deposit your donations (cash or cheque) in favour of:

Name: Loke Kai Xin
Maybank Berhad A/C No.: 1-14013-213313

May the compassion of Medicine Buddha cure all illnesses that is afflicting Loke Kai Xin now. May she has a speedy recovery, long and healthy life!

Thank you.

Pick Shan

Chan Pick Shan
Sr Quality Assurance Specialist
Formis BASS Software Sdn Bhd
20th Floor Menara PanGlobal
8 Lorong P. Ramlee
50250 Kuala Lumpur
Tel: +603 2070 5588
Fax: +603 2031 9403


Eric and Huey Jing’s email as follows:

Dear all,

My daughter Kai Xin has prolonged jaundice. When she is 3 months plus old, went for blood test and detected that she has biliary atresia, bile flow from the liver to the gallbladder is blocked. Doc told us that she has to immediately go for operation else her liver will be failure. We was informed that the best time to operate is six weeks after birth. However, when my daughter went for the operation she was 110 days age which means the success of the procedure is poor. Before the operations, the Doc told us that if she detected in later which is 4 -5 months age, they wouldn't advice or proceed for operations because the liver already failure. Doc also told us that if the operation completed within an hour, that means they can't proceed the procedure meanings her liver has failure. Although we are late, we cannot give out any chances to safe her life. So, she went for major operation known as kasai procedure in sunway medical center in Feb. We went thru very hard time and pray hard especially waiting outside of the operation room. The 1st hour is terrible to pass because we hope that the operation can be proceeding. God blessing the surgeon can proceed the operation for my daughter which took 3-4 hr. After the procedure, my daughter was in CCU one night and then change to normal wad after 24 hrs and stayed in the hospital for 9 days. Although we are very tired but most important and luckily the surgeon still can continue the kasai procedure for her to safe her.

After the operations, her motions slowly change from pile color to light yellow. Her jaundice still there. We went for follow up check up every week. However, the improvement is slow and Doc told us that if after two months from the operation, her jaundice still yet disappears and motion color not consistent with normal color meaning not good. We can't just wait until the second month check up again for the result.

Eric's colleague suggests seeking for 2nd opinion and her relative who is Prof in HUKM has introduced a Prof of Paediatrics Gasteroenterology/ Hepatology and Nutrition in UM to us. It is not easy to meet up those Prof especially in UH without appointment. Thanks god, Eric managed to find a contact number via internet and 1st time call managed to talk to the Prof Lee via phone. He advised to bring my daughter medical history to meet him. When Eric 1st visit to UH, the queue is so long and have to wait 40+ number only will be his turn. Eric talks to the nurses that just want to meet up with the Prof for while as the Prof asked him to see him. End up the nurse as him to sit at somewhere where the Prof will bypass. Luckily Eric had seen his picture on internet then can recognized him and approached him. The Prof Lee is very nice and sits down listen to Eric regarding my daughter’s condition.

Finally, we managed to make our 1st visit to Prof Lee in UMSC is 6 weeks after her operation. Upon examination, she still has moderate jaundice and her stools remained pale. Her liver was enlarged. Doc advice us that not to give out as there are babies with biliary atresia can be recovered with strong nutrition and advice us not to too worry about liver transplant at this moment. When we heard that still got chance to recover, we are so happy. She has not been gaining weight properly after the surgery. Therefore, Prof has introduced her to apply vitamin supplements vitamins, vitamin D, vitamin K, vitamin E, UDC, MCT Oil, a special die formula (Alimentum from Abbott) which taste is terrible for my daughter as this is the best formula which can help her absorb easily. This formula is not easy to find and limited, only available on selected Jusco. We have hard time to feed her because the taste is not nice. Subsequently, we brought kai xin for check up weekly at UMSC. Her weight slowly has gained compared to previous and little improvement on her jaundice. The Prof Lee is the best doctor that I never seen before. He provided us many advice and spirit support. We can contact him anytime as and when we has any quiry or need help.

Unfortunately, kai xin was admitted to UMSC hospital on April 21 for an episode of high fever for 8 days due to infection on her liver. Based on ultrasound, she is showing features of liver cirrhosis with minimal ascites. That means she is showing signs of liver failure. Liver transplant is required to save her. Baby with biliary atresia who has an unsuccessful kasai operation usually die of liver cirrhosis or complication at median age of 15 months. Therefore, kai xin needs an urgent assessment for suitability for liver transplant.

The only available liver transplant service available in Malaysia is at selayang hospital and usually will only accept children with body weight of 10 kg. However, kai xin is highly unlikely to achieve that kind of weight to enable her to be listed for liver transplant. Another hospital that can be considered is National University Hospital at SG. The liver transplant team comprised of highly skilled, multi-disciplinary team. Most important they generally accept baby who need liver transplant with weight 8kg. In order for her to gain weight adequately, Prof has introduced nocturnal feeding via nasagastric tube. We have to feed her every 3 hours using the NG tube as she started ill to drink milk. She must gain weight then only can go for the liver transplant.

We had decided to go to NUH for the liver transplant although the cost is very high about SGD 200K. Liver transplant is the only option for her to survive. We contacted the liver transplant coordinator in NUH and make appointment with them. We had visited to NUH on last week. We met up with the Dietitian, Liver coordinator, Hepatology specialist and Surgeon at NUH within half day. They are very professional and performed the first time clinical check up for my daughter. The pre-assessment for liver transplant is required to be arrange as soon as possible for my daughter and me or Eric who to be the suitable donor for kai xin. We have arranged to go to NUH for pre-assessment which required 1 week admission in hospital on early june 2009.

Unluckily, she sudden has fever again on last Friday and admitted to hospital again. Based on latest blood test result, her bilirubin has increase again. Her stomach getting bigger and bigger from day to day. We are very worry on her. She may needs to stay at hospital a week to clear the infection. We hope she can recover from infection soon then we can make it for the next week pre-assessment in NUH. Else, we have to reschedule to another week to SG. Nothing to gain while waiting. The risk for her is variable and increasing.

As parent, we hope ourselves suffer rather than she suffer. She is a fighter. Since birth until now, she has did many rounds blood tests, She is a baby girl likes to talk and smile. She brings happiness to us. Liver transplant is a big challenge and long journey we need to go thru with her. We pray hard for her. The most important thing right now is she need to be stable and fit until the liver transplant day. Either me or Eric must be the suitable donor for her. Else, she will be in very high risk and difficult to wait and find for another suitable donor. We pray hard for this not to be happen. We really hope she can be a healthy baby/kid like others. No matter how tough we had went through and need to go thru in future, we strongly believe she can overcome this.

Friends, please pray for my daughter. She need wishes and lucks from many people. Many many thanks and much appreciated from my family.

Sincerely, Huey Jing & Eric

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